Coen's First Steps 2.0

Yesterday, Coen walked on his own ("Walk by self, dada") for the first time since before his first surgery back in late January. Coen had walked for about two months before the surgeries to remove his tumor, but with severe pain that he would sadly pay for later (muscle spasms at night). Yesterday he walked and kept saying "no pain". Then he had a good night's sleep without the crazy spasms that we loathe so much. This is yet another step in the miracle process. It's amazing and needless to say, he loves it. We knew he'd start taking steps again soon, but figured it'd be about 3-4 weeks out. This means that he'll be ready to roll with his cousins in California this summer, which is definitely what we've been hoping for.

Coen's left-side hip and leg muscles are still really stiff and severely contracted. The physical therapist said that it will likely take about 1-2 years to work the muscles out. Coen is in PT every week and we do stretches at home with him everyday (which he hated at first and is now better about). It's going to be amazing to see his limp slowly work itself out. Nobody can perfectly predict the ultimate prognosis right now, but great progress continues to be made, so we're thrilled.

(Side note: Tauni says I sound like an uncaring deadbeat dad in this video, but the reality is that I was holding Ella while she slept and I likewise perhaps fell asleep as well. So, I'm not an uncaring deadbeat dad here, I'm just 3/4 asleep.)